Today I was on the phone with my fiancée and he mentioned he still checks my blog daily despite the fact that I don’t blog often anymore. It got me thinking about all the reasons I don’t really feel like sitting here and rambling on about my day to day life at the moment.
The truth is, I think it is a lot easier to share things openly when things aren’t going so well. Blogging about my illness and the struggles it created always felt good because it felt like I could help someone. Blogging about this past year, on the other hand, just feels like bragging. That being said, there’s a lot to be said for spreading hope and positivity – something I myself look for when reading online content. Had I been able to find someone with similar symptoms who experienced such a great turn around, I probably would have glommed onto them. But I’m still reluctant to share too many highs, why’s is that?
I think this prominently stems from the fact that I never want to mitigate the struggle of Lyme disease. I still take more pills than post people take in a week every single day. I still have to limit my physical activity and pace myself. I still sometimes have bad days and find myself scheduling in bed days every few weeks. But in between all that I’m doing so much and experiencing so much happiness that I’m afraid this will be confused with 100% recovery. There’s nothing more defeating than having someone say “I thought you were better” when I bow out of something due to my illness.
The other thing I’ve noticed is that not everyone is rooting for your happiness and recovery. This past year has been an absolute crazy uphill ride with some of the best days of my life – but I’ve also lost touch with people who I realize now probably weren’t actually hoping for the best. I don’t know if maybe people take comfort in knowing you’re struggling, or if it’s something deeper than that, but apparently it’s quite common in the chronic illness community to feel some isolation as you go through recovery.
Honestly, I’d love to promise that I’ll begin posting regularly again – but it may take some time for me to feel just as comfortable sharing the good parts of my life with the internet.